We have experienced the worst day of our lives today. We received the devastating news that Coltrane's tumors are aggressively growing (twice the size in ten days). The one in his brain alone is 1/5 of his brain now. The tumor around his spine is very concerning and his leg is not working properly because of it. I type through my tears that our options are extremely limited. Radiation/surgery would only produce severe side effects that would only result in decrease his quality of life and wouldn't improve the outcome. The doctors said that we would be "chasing our tail at this point". They have affirmed us that we have exhausted every possible avenue to help our son. Our Doctor will contact the Neuroblastoma experts in New York only for our own peace of mind, as they know what they will say. We have been given advice by many doctors and family members to not put Coltrane through any more agony than he's been through already. Right now the idea is to keep him cozy and comfy, and create great memories with him. It looks like we will be going home very soon and will receive the proper care. The doctors have given us a timeline of two to three weeks for Coltrane to live. We are beyond ourselves. We are still praising God and asking for a miracle. We have not given up on Him. Please keep praying for Coltrane's healing. We love you all so much. We are sad, angry, upset, and sick of all the hospital stuff that we've all gone through. Pray for us, please.
Please pray for:
Coltrane to be healed
Peace in our family
Joy every morning
The doctors and decisions they make
The decisions we make
Coltrane to feel good and play well
Wonderful quality family time
In Christ,
Justin
Sonja,
Jack
and Coltrane the Contrarian :)
My heart breaks for you and your family. As my own tears come for you, Coltrane and your family, I am in prayer for all things you are asking for. All my love, Serena
ReplyDeleteWe are praying for all of these things in Jesus' Name from Turkey. The Youngs
ReplyDeletePrayers to you all! May God be with you through this difficult time
ReplyDeleteWhat a beautiful boy. My heart is breaking for you as well and I have only known about Coltrane for 2 minutes. I will pray for all that you have asked, and more. May God bless you and give you the strength you need. -The Potters, NJ
ReplyDeleteNo words... Praying for a miracle!
ReplyDeleteMy heart breaks for you and little Coltrane. I will pray and pray for you and him. God bless you, from Colorado.
ReplyDeleteMy heart hurts right along with you. My son is 5 stage 4 neuroblastoma. We are in the same boat. Sept 8 he was given a month to live... here we are... one month later. I feel your pain. And from one cancer family to another. We love you.
ReplyDeleteWe hurt together. I am so sorry and we can pray for each other, what is our son's name?
DeleteI will continue praying for you! I have no words to express my sympathy!
ReplyDeleteThe prayer team at KLRC are praying for Coltrane and your family. From Jane...my heart breaks for you as you face this. May the God of all comfort hold you close and give you sweet family times to cherish always.
ReplyDeletePraying for you. words are not enough to comfort you at all. May God do that...
ReplyDeleteStanding with you all...God, Coltrane needs a miracle from above.
ReplyDeleteWe are praying for all of your family, especially Coltrane.
ReplyDeleteWe are praying for all of your family, especially Coltrane.
ReplyDeletePraying for Peace and rest for you and the boys.
ReplyDeleteYour fellow Oklahoma cancer families are praying hard. If there is ANYTHING we can do please don't hesitate to ask. ♡- Arleigh's aunt
ReplyDeletePraying that you all have peace and make joyous memories with your precious little one. With God all things are possible, especially miracles!!
ReplyDeleteJustin and Sonja, my heart aches for you. We are praying beside you for miracles and peace and wisdom beyond comprehension!
ReplyDeleteThe Lentzes
This comment has been removed by the author.
ReplyDeleteJesus heal this sweet boy and his family
ReplyDeleteOh Dear Lord, please heal this little boy and give peace and comfort to his family. In Jesus' name, Amen.
ReplyDeletePrayers, simply prayers for this baby boy and for his family and medical teams.
ReplyDeleteOur hearts are breaking for you. Praying along with all the others here. Love Shane and Christi Slaton
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteContinued prayers, love, and hope for all of you. So thankful that we all serve Jehovah Jirah who will provide everything that you need during this journey. So saddened that this journey is even happening. You are loved and lifted up in prayer.
ReplyDeleteI am still praying for some miracle to happen for Coltrane and your family. God bless all of you in this time of great trial.
ReplyDeleteJustin, You were my favorite Cubbie ever! I see pictures of Coltrane and I see you as I first met you. I am praying for a miracle for you. Coltrane is is good hands both here and in heaven. I heard a song the other day by Casting Crowns called "Just be Held" . It is my prayer for you.
ReplyDeleteGod bless you all. We've prayed for a miracle.
ReplyDeletePrayers for this precious kiddo
ReplyDeletePrayers for this precious kiddo
ReplyDelete